So after many rolls of toilet paper, doses of probiotics, doctor visits, samples of blood given and middle of the night bathroom trips, I can't help but wonder. What is normal for someone who suffers from UC?
In the nearly two years that I have had this condition I have yet to meet many people who have the same ailment. This can be very frustrating and discouraging given that I really need someone to talk to about this other than my wife. Bless her heart, she has been very supportive and understanding. Especially considering that we only have one bathroom. As great as she is and as much as she tries to understand, when it comes right down to it, she just can't relate.
I have not had a severe "flare up" for over a year and a half now. I do however, have good days and bad days. Thankfully I have been off prednisone for a little over a year. My maintinence drug that I am taking is Lialda. Quite honestly though, I wonder what good it is really doing. What does seem to be helping hold off a relapse is daily doses of probiotics, a calendula and chamomile tea blend, and eating yogurt. All of which I take several times a day. What seems to be working for others?
In the nearly two years that I have had this condition I have yet to meet many people who have the same ailment. This can be very frustrating and discouraging given that I really need someone to talk to about this other than my wife. Bless her heart, she has been very supportive and understanding. Especially considering that we only have one bathroom. As great as she is and as much as she tries to understand, when it comes right down to it, she just can't relate.
I have not had a severe "flare up" for over a year and a half now. I do however, have good days and bad days. Thankfully I have been off prednisone for a little over a year. My maintinence drug that I am taking is Lialda. Quite honestly though, I wonder what good it is really doing. What does seem to be helping hold off a relapse is daily doses of probiotics, a calendula and chamomile tea blend, and eating yogurt. All of which I take several times a day. What seems to be working for others?
my friend had that until it developed in to Crohns disease....she just watches what she eats and it seems to help her.
ReplyDeleteI try to avoid eating certain things that I know won't sit well. Even then sometimes that doesn't help much. Stress is the biggest trigger. I have good days and bad days. I didn't realize that UC could turn into Crohn's? My understanding was that they were really close in relation to each other.
ReplyDeleteI've heard of people getting diagnosed with UC when really it was Crohn's.
ReplyDeleteUnfortunately there are loads of us now with UC and nobody seems to know what triggers it to start or how we get rid of it without surgery, and I don't want to have surgery...there has to be another way.
From what I can tell, we all seem to suffer slightly different from each other and our triggers also vary. Hopefully one day we'll all get better through a natural process..a girl can dream can't she :D
I am with you on not wanting surgery. I have never heard about people getting misdiagnosed...interesting. There are different schools of thought on what natural remedies work and how much to take. I would opt for "natural" any day of the week. I hate taking drugs that are man-made that don't seem to work all that well.
ReplyDelete